Thursday, June 13, 2013

KEEPING 'EM SAFE

The picture of Bradyn on the beach I posted yesterday is from our family vacation to Gulf Shores this past March.  We had a great time, and he really loved it.  I have "liked" different pages on FB pertaining to Gulf Shores since then, to keep up with the goings on of our family's vacation spot.  A few weeks ago notices about a missing 8 year old non-verbal autistic boy started showing up on my newsfeed.  As I read the story, my heart just sank.  He was vacationing with his family on the beach not far from where we had just been.  After spending some time at the beach, they all went back to their condo to take a nap.  When his parents woke up, he was missing.  I followed the story closely, and learned quite a bit.  Before this, I had never heard of how autistic children tend to wander.  Many parents of autistic children shared their stories about their children wandering.  I got chills as I realized we have had similar experiences with our son.  I just never related it to his ASD before this.  Sadly, after 2 days of searching, the missing boy's body was spotted washing up on the shore less than a mile from where he was staying with his family.  How terribly sad.  We can only be thankful that his parents didn't have to leave without him.  Without ever knowing what happened to him.  He was a beautiful little boy, and he left quite an impression on my family.  We will never forget little Owen Black.

Through this tragedy, our family learned how to better serve and protect our own son.  He has had a history darting off, wandering into neighbor's garages or sandboxes while we're all outside, opening the locked doors to our house, and even our vacation house when we were in Gulf Shores.  Luckily the dog usually runs out of the door before he does, so he yells "Oh no!  Sugar ran away!" and we end up going after the dog instead of him.  And even though we have explained to him that this behavior is dangerous for him, his younger siblings and the dog, it just never sank in. 

Following this tragedy, we found a lot of useful information in a statement released by the National Autism Association concerning wandering autistic children.  One very useful tool is called the Big Red Safety Toolkit.  We got a really good idea from this toolkit that has worked out really well for our son.  We printed little red stop signs (two on a letter size paper), laminated them, and taped them at his eye level on all the doors leading out of our house.  Bradyn in particular really likes stops signs.  He always insists that I stop at every stop sign he sees while we are in town.  So we explained to him, and our 4 year old daughter Nataley, that these stops signs mean you need to stop.  Do not proceed, do not open the doors or leave the house without an adult.  It has worked great.  In fact, today I was in the kitchen doing dishes when Nataley and Bradyn where standing at the sliding glass door just off the dining room.  Nataley was trying to unlock it when Bradyn told her, "No Nataley!  We don't leave the house without mommy."  I was so proud of him, and I praised him and rewarded him right away.  I also reminded Nataley what the red stop sign meant.  This is one simple and easily applied solution to a life threatening problem.  So I just had to share.  Here's to keeping 'em safe!      

         

Wednesday, June 12, 2013

So here we are, on our desolate island =D

I was inspired to create this blog today by Autism Daddy and my little boy.  Thanks Guy-E!  That's the name my son gives all those whom he considers his buddies ;0)  He's pretty awesome.  He's also my only boy out of 4 children.  His name is Bradyn a.k.a. "Bear", he will be six on July 1st, he just had a rough first year of kindergarten, and he has mild ASD with moderate ADHD.  At least that is what the doctors are going with right now.  We are new to the circuit, having been titled, or diagnosed, this past February.  It's mind boggling.  We are still wrapping our heads around it.  Looking back from the beginning, this new information changes a lot of things.  It changes the way we perceived like his whole life.  I'm still not convinced it all adds up.  That's just because I have a hard time coming to this conclusion, or diagnosis, without all the factors to the equation.  That's just the way I think (drives my husband crazy.)  I try not to demand absolutes, but gray areas make me anxious.  Especially concerning my kids. 

As I mentioned in a comment on Autism Daddy's Blog, there are so many new people in our lives now since Bradyn's diagnosis.  I both appreciate them and want to live on a desolate island at the same time where we don't have to deal with them. Somewhere "safe" for Bradyn to just be Bradyn. No shoes, no shirt, no social graces, no problem!  Which is what inspired me to create this blog.  As many of you know, especially in the beginning, besides feeling hopelessly overwhelmed, you can feel very alone as a parent or parents going down this road.  It helps to reach out and connect with others who just get it.  Who know what you are going through, or if they don't exactly know, they are at least understanding and supportive.  Well, hope I haven't jumped off into the deep end here!  But my little boy inspires me to do amazing things :D I look forward to sharing more with you all soon...


Bradyn's favorite character (besides Wall-E) and one of his favorite songs.  He loves to be curious just like George.  Who's to say, "What's impossible?"  :0)